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Von Hippel-Lindau Disease

Also called: VHL

Summary

Von Hippel-Lindau disease (VHL) is a rare, genetic disease that causes tumors and cysts to grow in your body. The tumors can be either cancerous or benign. They can grow in your brain and spinal cord, kidneys, pancreas and, in men, their genital tract. Symptoms of VHL vary and depend on the size and location of the tumors. They may include headaches, problems with balance and walking, dizziness, weakness of the limbs, vision problems and high blood pressure.

Detecting and treating VHL early is important. Treatment usually involves surgery or sometimes radiation therapy. The goal is to treat growths while they are small and before they do permanent damage.

NIH: National Institute of Neurological Disorders and Stroke

Learn More

  • (American Academy of Neurology)
  • (VHL Alliance)
  • (VHL Alliance)
  • From the National Institutes of Health (National Institute of Neurological Disorders and Stroke)
  • (American Society of Clinical Oncology)

Genetics

  • From the National Institutes of Health (National Library of Medicine)

Clinical Trials

  • From the National Institutes of Health (National Institutes of Health)

Journal Articles References and abstracts from MEDLINE/PubMed (National Library of Medicine)

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