URL of this page: http://freefacebookcredits2012.info/rarediseases.html

Rare Diseases

Summary

A rare disease is one that affects fewer than 200,000 people in the United States. There are nearly 7,000 rare diseases. More than 25 million Americans have one.

Rare diseases

  • May involve chronic illness, disability, and often premature death
  • Often have no treatment or not very effective treatment
  • Are frequently not diagnosed correctly
  • Are often very complex
  • Are often caused by changes in genes

It can be hard to find a specialist who knows how to treat your rare disease. Disease advocacy groups, rare disease organizations, and genetics clinics may help you to find one.

NIH: National Institutes of Health

Learn More

  • From the National Institutes of Health (National Human Genome Research Institute)
  • From the National Institutes of Health (National Human Genome Research Institute)
  • From the National Institutes of Health
  • From the National Institutes of Health (National Library of Medicine)
  • From the National Institutes of Health (National Human Genome Research Institute)
  • From the National Institutes of Health (National Human Genome Research Institute)
  • (Food and Drug Administration)

Related Issues

  • From the National Institutes of Health (Genetic and Rare Diseases Information Center)

Clinical Trials

  • From the National Institutes of Health (National Institutes of Health)

Journal Articles References and abstracts from MEDLINE/PubMed (National Library of Medicine)

Find an Expert

  • From the National Institutes of Health (Genetic and Rare Diseases Information Center) Also in